
Members of the Lecanto High Dementia Awareness Club pictured with Ms. Debbie Selsavage of Coping with Dementia after completing the workshop on the effect of dementia and receiving their brain bags on support materials in caring for someone with Dementia (Photo Courtesy: Amadeus Solis)

Club Vice President Amadeus Solis (author) and Co-President Rafe Nichols conversing with a resident of The Summit memory care unit (Photo Courtesy of Ms. Carmen Pagán Marti, club sponsor)

Intergenerational Contact with members of the Dementia Awareness Club and residents of The Summit’s memory care unit (Photo Courtesy: Anushya Padala, Co-President)
Lecanto High’s Dementia Awareness Club:
Bridging Gaps in Understanding of Dementia
Written by: Jan Amadeus Solis
“Dementia is an umbrella term that describes a collection of symptoms caused by disorders affecting the brain … impacting thinking, behavior, and the ability to perform everyday tasks,” explains dementia rights advocate Kate Swaffer. Yet despite its growing prevalence, many Americans continue to misunderstand the condition, often reducing it only to memory loss.
In the United States, an aging population has contributed to alarming projections: by 2050, more than 16 million Americans are expected to have Alzheimer’s disease, just one form of dementia. Still, general awareness remains limited, especially among younger generations.
At Lecanto High School, however, students in the Dementia Awareness Club are working to change that.
Students Are Learning Beyond the Stereotypes
The club, founded to educate teens on the realities of dementia, exposes its members to the wide-ranging symptoms of the disease, symptoms that extend far beyond memory loss to include difficulty speaking, changes in behavior, impaired peripheral vision, and more.
“High school students often have family members affected by this disease,” said co-president Anushya Padala, sister of club founder Ananya Padala. “It’s important to understand how dementia impacts people and how to interact with them with patience and compassion.”
Recently, club members completed a two-session workshop led by Ms. Debbie Selsavage of Coping with Dementia, an organization dedicated to training caregivers of individuals with Alzheimer’s and dementia.
“I am very proud to be a part of such a wonderful club,” Selsavage said. “It has been an honor to watch these students grow in their understanding and succeed in their visits with people living with dementia.”
Students Are Making Connections Through Service
The students have put their training into action by visiting residents at local assisted-living and memory-care facilities, including Cypress Cove Care Center and The Summit (formerly Grand Living). During a recent Saturday visit to The Summit, students talked with residents, played games, and shared snacks.
“Many residents expressed genuine happiness and appreciation,” said co-president Rafe Nichols. “For our students, it was eye-opening. The visit showed the powerful effects of compassion, patience, and companionship.”
Nichols described the experience as “mutually enriching,” explaining that while residents enjoyed a break from routine, students gained more profound insight into intergenerational relationships and the emotional realities of dementia.
Students Have Made It A Personal Mission
For many in the club, dementia is not an abstract issue, it is deeply personal. Nearly every member has known a loved one affected by the disease.
The article’s author, for example, lost a grandfather to Alzheimer’s disease shortly after his diagnosis. Nichols also watched Alzheimer’s disease “take the essence of who [his grandmother] was.” Padala’s grandfather struggled with dementia at a time when she did not yet understand the cause behind his behavior.
“I didn’t know why he was acting the way he was,” Padala recalled. “It was frustrating not being able to talk to him the same way. Learning about dementia has helped me develop patience and compassion.”
A Model for Compassionate Youth Leadership
As dementia continues to affect millions of families nationwide, understanding the condition and the individuals living with it becomes increasingly important. Lecanto High School’s Dementia Awareness Club is offering a model for what that understanding looks like: education, empathy, and engagement.
In a society where dementia is often misunderstood and stigmatized, the club’s efforts stand out as a rare but meaningful step forward. Through training, community involvement, and personal connection, these students are helping build a world where individuals with dementia are treated not with fear or frustration, but with care, dignity, and compassion.